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The term "chronic fatigue syndrome" can be misleading and is
hugely inaccurate, as chronic fatigue is only one symptom of
this unpleasant disease. Therefore we will use the term 'myalgic
encephalomyelitis' instead.
ME is a mysterious, exhausting illness, one when first
recognised was dismissed as overdramatized debility or, of
psychological origin as a result of a highly pressurized
lifestyle. Nothing could be further from the truth. ME is a very
real disease, a disease that causes severe anguish to sufferers
when its existence is denied, which is not surprising that
desperate patients spend large amounts of money and a great deal
of precious, wasted energy searching for the elusive miracle
cure.
Despite ongoing research, the cause of myalgic encephalomyelitis
is not yet clear. However, the symptoms usually develop
following a failure to fully recover from a certain virus
infection. The initial infection, which at first may not seem
severe, most often includes that of respiratory or
gastrointestinal illness - influenza, bronchitis, sore throats,
hepatitis or jaundice. Most people recover completely from these
illnesses, however there is a small percentage who, following
the illness are left feeling extremely tired and depressed.
Symptoms so severe that even the slightest exertion may result
in such muscle weakness, that the patient is forced to take
several days rest to recover.
ME can strike just about anyone at anytime - an illness that
knows no racial, social, economic or geographic boundaries!
However, figures do suggest that it is more common in those in
their late twenties or early thirties - active, successful
people - those frequently pressurised by modern, fast-paced
lifestyles. This is probably what lead the media into dubbing it
"yuppie flu".
Another factor common to ME patients is the number of allergic
reactions - twice as many skin reactions as people without the
disease. We don't know why this is so, but this information may
indicate that the patient may be overly sensitive to certain
agents. Such extra sensitivity may predispose the patients to
infections or other types of abnormal reactions to foreign
substances which may just account for the illness.
Symptoms:
The severity of symptoms and the debilitation caused by the
disease are often underestimated by attending doctors, family
and friends.
Extreme exhaustion if the most characteristic symptom, although
a number of other symptoms often accompany the disease:
- Muscle weakness - Muscle weakness can be so great that the
patient battles to support his own body - even a short trip to
the bathroom may render him immobile for the rest of the day!
- Depression - Patients feel generally unwell and often
experience worrying mental symptoms such as a loss of memory
or the inability to concentrate. Psychological effects, such
as mood swings and depression are also common. One should keep
in mind though, that depression is a reaction to, and in most
cases not the cause of the disease.
- Recurrent headaches
- Difficult, poorly articulated speech (dysarthria)
- Tinkling or ringing heard in one or both ears (tinnitus) -
often increasing with ones level of tiredness.
- Extreme sensitivity to movement
- Persistent itch skin rashes
- Chest pains
- Localised sweating
- Fever and shivering fits
Nausea and stomach complaints
- Insomnia
- Swollen glands
- Strong body odour
- Sore throat
Treatment:
Seeing that neither physical examinations not laboratory tests
produce findings specifically related to ME, treatment involves
relieving the symptoms. Psychiatric counselling is often helpful
in treating the depression that frequently accompanies the
syndrome. Symptoms may last for years, whilst others seem to
clear within a few months. Some patients may also be offered
periods of relief from their symptoms - an improvement that
could eventually lead to full recovery. Other sufferers will
degenerate as they become progressively worse - some never
reaching full recovery, however the syndrome usually suddenly
resolves itself.
Presently, there is no cure for ME, and until the exact cause is
known, complete, effective treatment is unlikely. Patients can
however, take comfort in knowing that ME is not a
life-threatening illness, and that there are some forms of
treatment, even if these only offer symptomatic relief. In
addition to medical treatment, both the family and the patient
need to be counselled and supported through the more difficult
times of the illness.
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